Who is Londyn Buss? 13-year-old girl died of DIPG after battling over 2 years

Londyn Buss
Jessica Buss (Londyn Buss) passed away


Londyn Buss aka Jessica Buss has passed away after fighting DIPG for almost two years. Let’s see who is Londyn Buss and what happened to her in detail.

Who was Londyn Buss?

Jessica Buss aka Londyn Buss was a 14-year-old girl who passed away after a valiant battle with DIPG.

Londyn Buss died on March 17, 2023, after fighting DIPG for nearly two years. She was radiantly filled with joy, and she generously shared it with everyone until she passed away.

Londyn and her mother waged a tenacious battle against DIPG and even supported other families going through the same struggle. She will be cherished, recognized, and remembered for her bravery and kindness.

Londyn Buss DIPG
Londyn Buss (Jessica Buss)


What happened to Londyn Buss?

Londyn Buss, a seventh-grader, was given a DIPG diagnosis on May 11, 2021. Londyn, the family’s middle kid, has two brothers: Tristyn, who is younger, and Gage, who is older.

They reside in Nebraska, but like the majority of children with DIPG, they must travel to a different hospital for care.

Londyn was enrolled in an ONC201 trial at a participating hospital after receiving her first radiation treatment in Omaha (2.5 hours away from her residence).

To meet with Dr. Koschmann and keep track of her tumor symptoms, Londyn goes to the University of Michigan, where Noah also received medical care.

Londyn Buss DIPG
Londyn Busss, age 14, daughter of Jess Buss has passed away from DIPG


Londyn Buss DIPG struggle:

Two years ago, a 13-year-old girl, Londyn Buss was diagnosed with an incurable brain tumor called DIPG.

DIPG is an aggressive kind of cancer that develops in the brainstem. It is a rare, rapidly growing tumor that develops in glial cells in the pons region of the brain stem.

DIPGs are difficult to treat and have a bad prognosis because they frequently spread to nearby tissue and other areas of the brain stem.

Diffuse Intrinsic Pontine Gliomas are the most prevalent type of pediatric brain stem cancer, accounting for 75-80% of all pediatric brain stem tumors. It usually occurs in Children.

Recently, Londyn has been having tumor-related issues, including issues with her balance, swallowing, and vision.

Londyn had an MRI in April 2022, and it revealed that her tumor was steady with some shrinkage. She continued her treatment with strong will.

Londyn Buss’s cause of death:

Londyn Buss died after battling with DIPG (Diffuse Intrinsic Pontine Gliomas) for two years. She passed away today at the age of 14.

Jennifer Ward Kleisinger shared this sad news on social media saying,

“I have deeply saddened to hear the news of such an incredible loss. My heart aches for you and with you Jessica Buss. Jessicas’s sweet, funny & sassy daughter Londyn Buss has taken her last breath here on earth. This one hurts so bad! Londyn was just a kid she was one of a kind!

Jessica Buss was a spitfire that would steal your heart in seconds! She was the best Londyn ever! She was diagnosed with DIPG on May 11th, 2021. Londyn and my son Gavin were fighting this fight together. They were battle buddies. Londyn gave DIPG hell and never gave up!

May god bless Jessica, Tristyn, and Gage with peace, comfort, and courage to help face all the very sad days ahead! Sending so much love!

I’m so sorry Londyn! We love you! Dance in that beautiful sky and send your mama lots of signs. Please hug my sweet boy for me.”

Condolences flooded social media after the demise news of Londyn broke out.

Tributes to Londyn Buss:

Mina Carroll posted,

Londyn Buss, I have loved you since the first time I met you. I used to think that my desire for a cure couldn’t possibly be stronger than it was, but today, after learning that you have gone home to Heaven, my desire for a cure and determination to keep fighting has never been stronger. You have fought so hard for so long. Rest, kiss our babies who have gone before you, we will continue your fight. WE WILL DO BETTER. 2GETHER.

DIPG, WE are coming for you. Promise.

Lisa Marie Gonzales posted,

We are sad today. We lost our very best Pal Londyn Buss to DIPG, the deadliest of childhood cancers.

Londyn fought like the champ that she was, approaching every day with a fierce determination and unparalleled wit.

She was here to teach us all how to live, every, single, day and to fight for what we believe in. Londyn, we learned so much from you and we will ALWAYS fight for you and all of your friends who deserve so much more. YOU will continue to fuel our passion.

We miss you already sweet girl.

Daniela Cristobal posted,

Rest in Peace. This is not a rare disease. There is NO known cure.

There is NO known successful treatment.. NO explanation as to why it happens. The overall survival rate is LESS than 1%!

No family and children should have to deal with this let alone have no explanation. My heart breaks over and over every time a beautiful soul is taken by DIPG.

Lisa Marie Gonzales posted,

Love you Buss’s! Londyn you will continue to light our way and inspire us to keep fighting. We miss you already.


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