What is Stiff Person Syndrome? Celine Dion diagnosed with untreatable disease, explained


What is Stiff Person Syndrome? Celine Dion diagnosed with untreatable disease, explained


Celine Dion, 54, has a terminal neurological condition: The uncommon, one-in-a-million condition known as “Stiff Person Syndrome” causes victims to resemble “human statues,” as the tearful singer revealed. Let’s learn more about What is Stiff Person Syndrome in detail.



What happened to Celine Dion?

Stiff Person Syndrome (SPS), which causes her muscles to stiffen up compulsively, has been identified as Celine Dion’s condition.

As the body gradually locks into stiff positions, the illness ultimately renders sufferers “human statues,” rendering them unable to walk or speak.

Even though there is no medication to reverse the illness, Celine says she is doing everything in her power to lessen symptoms.

In an emotional Instagram message on Thursday, the 54-year-old singer apologized to her followers and said she had to postpone her European tour due to it.


Celine Dion breaks down while announcing the postponement of her tour dates.


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A post shared by Céline Dion (@celinedion)

“Hello everyone, I apologize for taking so long to get in touch with you,” she wrote. I’m very excited to see you all on stage and talk to you in person because I miss you all so much. As you may know, I’ve always been honest about everything, and while I wasn’t yet ready to speak up, I am now. “I’ve had health issues for a while, and it’s been incredibly difficult for me to face my struggles and to talk about everything that I’ve been through.

I recently learned that I had stiff person syndrome, a highly rare neurological condition that affects 1 in a million people. We now know that this is the cause of all the spasms I’ve been experiencing, even though we are still learning about this uncommon ailment.




Celine explained the impact of her illness

Sadly, these spasms hurt every area of my daily life, often making it difficult for me to walk and preventing me from using my vocal cords to sing as I used to. I hate to break it to you now, but I won’t be prepared to resume my European tour in February because of this. My wonderful children are supporting me and helping me, and I have an excellent team of doctors working with me to get healthy.

Every day, I put in a lot of effort with the help of my sports medicine therapist to regain my strength and performability, but I have to admit, it’s been difficult. I’ve spent my entire life singing, and it is what I love doing the most.

I always give my best when I play for you, but my condition now allows me to offer you that right now. I miss seeing all of you on stage performing for you. I have to focus on my health right now to get in touch with you again, and I have faith that I’m on the road to recovery.

I’m concentrating on this and doing everything I can to recover. I want to thank you all so much for your kind words, support, and encouragement on my social media. I greatly value this. Take care of one another. Good luck. I adore you all so much and sincerely want to see you soon.

“Cancelling events”

When she postponed the North American dates of her Courage world tour from March 9 to April 22, Celine gave her first indication that she was having health problems. According to a press release on her website, “severe and persistent muscle spasms” prompted her to cancel the events. Three months prior, she had to postpone the beginning of her Las Vegas comeback residency due to the same health problem.

Treatment for muscle spasms

Celine recently underwent treatment for severe and chronic muscle spasms that prevent her from performing, and her recuperation is taking longer than she had hoped, according to a statement on her website.

“Her medical staff continues to assess and manage the issue,” it says. I was hoping that I’d be ready to leave by now, but I guess I simply have to be more patient and follow the regimen that my doctors are recommending, the patient woman admitted.

‘There’s a lot of planning and preparation that goes into our shows, so we have to make decisions now that will affect the plans two months from now,’ the legendary singer continued. I can’t wait to return to the stage once more and am so happy to regain my full health along with everyone else. Meanwhile, I’ve been very moved by all the kind messages that everyone has been sending my way on social media, she concluded.

Your love and support mean the world to me, and I can feel them. Due to her wildly popular residencies there over the previous couple of decades, Celine earned the title “Queen Of Las Vegas.” She was persuaded to return to Sin City to perform at the brand-new Resorts World on the Strip after ending her renowned Caesars Palace engagement in 2019.

Celine’s loss in her personal life

Losing her spouse at the age of 73 in 2016, it’s the most recent sorrow to affect Celine. With her late husband, Celine had three sons: twins Nelson and Eddy, age 11, and Rene-Charles, age 20. When she first met Rene, a 38-year-old singer, he was in Canada when she was just 12 years old. He was appointed her boss.

He reportedly mortgaged his home to finance her 1981 debut album La Voix du beau Dieu, demonstrating his commitment to supporting her career. In 1987, when Celine was only 19 and Rene was 45, they started dating formally. In 1991, they became engaged. She didn’t make their relationship public until 1993 when she slipped the news into the liner notes of her album The Colour Of My Love.

They were married in Montreal’s Notre-Dame Basilica in December 1994, and Rene’s funeral and Rene-Charles’ christening took place there as well.

In January 2016, Rene, who was 73 and had terminal throat cancer, passed away following a heart attack. Celine lost her brother Daniel to throat cancer two days later. In August of that year, Celine released the tribute album Encore un soir in French, along with a single with the same name that became popular in francophone markets.

Stiff-person syndrome (SPS)


  • A rare neurological condition called stiff-person syndrome (SPS) resembles an autoimmune disease.
  • SPS is characterized by varying levels of muscle rigidity in the trunk and limbs as well as an increased sensitivity to stimuli including noise, touch, and emotional distress that can cause muscle spasms.
  • The disease is characterized by abnormal postures, which are frequently slumped over and inflexible. Because street noises, like the sound of a horn, can produce spasms and falls, people with SPS may be unable to walk or move, or they may be scared to leave the house. Women are twice as likely to develop SPS as men.
  • It frequently co-occurs with autoimmune conditions such as thyroiditis, vitiligo, diabetes, and pernicious anemia. Although studies suggest that SPS is the result of an immunological reaction that went wrong in the brain and spinal cord, the exact origin of SPS is still unknown.
  • The condition is frequently diagnosed incorrectly as Parkinson’s disease, multiple sclerosis, fibromyalgia, a psychosomatic ailment, anxiety, and phobia.
  • A blood test that assesses the quantity of glutamic acid decarboxylase (GAD) antibodies in the blood can provide a conclusive diagnosis.
  • Increased levels of GAD, an antibody that fights an enzyme involved in the manufacture of a critical neurotransmitter in the brain, are found in individuals with SPS.

Symptoms of SPS

The development of stiff person syndrome symptoms can take several months to a few years. While some people steadily deteriorate, others remain stable for years.

  • The muscles of the trunk and abdomen are typically the first to stiffen and expand in sufferers with stiff person syndrome.
  • Pain, muscle stiffness, and agonizing discomfort.
  • In the beginning, stiffness may come and go, but eventually, it won’t change.
  • Leg muscles stiffen over time, and other muscles throughout your body do too, including the arms and even the face.
  • Some people started to lean over as their stiffness increased.
  • If the stiffness is severe, it may be difficult to walk or move.
  • Muscle spasms can be extremely painful. In a few seconds, a few minutes, or possibly a few hours, these spasms may last.
  • The spasms can occasionally be so strong that they dislocate a limb, shatter a bone, or induce uncontrollable falls.
  • Usually, the spasms make the muscles stiffer.
  • Spasms can happen for no apparent reason or they can be brought on by physical contact, a cold atmosphere, an unexpectedly loud noise, or a stressful incident that triggers an emotional reaction.
  • The entire body may experience muscular spasms or just one particular location.
  • Spasms are typically less frequent when people sleep.

Complications of stiff person syndrome 

Stiff person syndrome causes limited movement and muscle spasms. These issues can lead to complications including:

  • Anxiety and depression.
  • Dislocated or broken bones from severe muscle spasms.
  • Frequent falls.
  • Excessive sweating (hyperhidrosis).



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